i recently wrote about the excitement of soon tapering the pre.dniso.ne. roxy’s urine had been testing “trace” for protein for many days and upon calling the doctor last week, they were not happy to hear it hasn’t been negative. suddenly her specialist is a bit grave about her prognosis and thinks perhaps she doesn’t have minimal change nep.hrotic syndrome after all and it could be the more serious form of kidney disease, fsgs. if things don’t turn around, she’ll order a biopsy.
red is learning everything she can about this and giving me the cliff notes throughout the days. to hopefully keep a kidney transplant or dialysis out of roxy’s future, we’ve begun some homeopathic practices to supplement the prednisone. roxy has been served raw garlic in applesauce – we’ve found a few people that insist this has lowered protein leakage within 24 hours (no luck yet but the child smells like a pizza shop). red also wonders if a hidden food allergy could be irritating her kidneys so we’re going to play around with eliminating dairy, wheat, and sugar. obviously this is a shot in the dark but that’s exactly what the doctor seems to be doing – taking guesses because they just don’t know.
only a couple more weeks until the decision is rendered. we went ahead and booked a cottage for fami.ly week in pt.own this summer and are hopeful that we’ll still be a family of three by then. it’s also our anniversary week and is where the schooner we got married on is docked so we’re sure to have lots of fun. the last time we spent a full week there was when we got married and so it seems fitting that the first time we return will be as a new family.
i took roxy to her first gym class this week. parents sit outside the room and there isn’t a window to watch but i heard her name constantly called back to the circle and i cringed knowing she was disrupting the class. this was her first organized class so i expect it’ll be a learning curve for her to understand how to be part of a group. i ordered roxy’s violin and she’ll start lessons soon (1/32, even though she really could’ve used the 1/64). in the meantime, she’s loving this guitar we’ve had in the trunk of our car since xmas and forgot to give her. we went to red’s band practice sunday and roxy loved being part of the action but here is a photo of her taking a break from all her dancing and strumming.